Showing posts with label hopeful parents. Show all posts
Showing posts with label hopeful parents. Show all posts

Wednesday, April 27, 2011

To Not Have Him (Hopeful Parents)

Another month gone by and I haven't posted a darn thing here.  As usual it is not that nothing has happened, it's that too MUCH has happened and that by the time I process one thing and start to write about it I either get interrupted or a new crisis erupts.

I will tell you that Abe broke his wrist playing baseball at a tournament and that when I saw him crouched on the field holding that limp wrist I jumped up and down on the clangy metal bleachers and screamed every swear word I know. Yep, I'm calm in a crisis.  After a couple of nerve-wracking days of uncertainty over what was broken (or not) we landed with a most fabulous hand surgeon, who thankfully did not suggest surgery, but fashioned a beautiful cast with which Abe can still play baseball. I found myself jumping up and down on a different set of clangy metal bleachers a week later when he hit a single and a triple after switching back to righty hitting (after three games of lefty bunting he decided that just wasn't his thing) wearing the cast.  It's amazing he can play at all, and believe me I asked the doctor fifteen different ways if he was sure he didn't risk further injury. 

And I'll tell you that Oscar, that same weekend, performed so beautifully with the Latin American youth ensemble Los Mapaches, leading the group onto stage confidently playing bombo, a traditional drum made from wood and sheep's skin. He sang out earnestly, played zampona, and did his best with the dances.  After the concert, a member of the adult Latin American music ensemble complimented Oscar on his bombo playing and all I could think was "he doesn't know!"  That man doesn't know that Oscar has a disability and that he worked extra hard to learn that complex beat that might have come easier to someone else. He wasn't just being nice. (If he'd complimented Oscar's dancing I'd know he was just being nice). Oscar idolizes the adult musicians and just beamed up at him emitting a barely audible "thanks".

And I'll mention that Ruby's perseverance and stamina on the soccer field is astounding me.  Before this season she liked soccer, but now she seems to love it and runs harder and longer than I thought she could.  Some parents from her old preschool formed an all-girl team this season and she's so thrilled to be with her old buddies again twice a week.  Last week, after playing for nearly 45 minutes without a goal, her team finally scored against a dominating squad.  The girls, all just 5 and 6 years old, immediately rounded into a joyful celebratory circle, red sweaty cheeks pressed together, and laughed and whirled around. I got all teary-eyed as did my good friend B, not because her daughter scored the goal, but I think because like me she saw in that spontaneous celebration how our girls are already understanding perseverance and teamwork and friendship on such deep levels.

So that's a slice of our month.

Today is my day over at Hopeful Parents. I posted an essay I'm working (or should be working on) that I adapted from a blog post here a year or so ago. 

Sunday, March 27, 2011

Seeking Calm (Hopeful Parents)

I'm over at Hopeful Parents today, writing about anxiety again (and my first attempt at meditation).  I'm tired of the anxiety and I'm tired of writing about it. I figure you might be tired of reading about it too, so after I drafted that post last night I wrote a whole other, more hopeful, post about Oscar.  I'll share that here sometime this week...but the truth is the anxiety is ruling me right now, so that's what I posted after all.
 

Monday, February 28, 2011

Back!

We're back from our wonderful trip to Hawaii, and I will definitely post some pictures this week. But for now here's the post I wrote for Hopeful Parents on the plane ride home!

Saturday, November 27, 2010

Coming Together Again (Hopeful Parents)

I'm over at Hopeful Parents today, writing more about Oscar's tenth birthday.  Come check it out and leave me a comment here or there!

Wednesday, October 27, 2010

The Beginning of a Long Conversation (Hopeful Parents)

I'm over at Hopeful Parents today (!!) trying to answer some questions Oscar has about disability.

Come check it out, and stay and read other entries too. 






Monday, September 27, 2010

Hopeful Parents

I'm over at Hopeful Parents today writing about the importance of community in helping the first child diagnosed with autism reach his potential in life. Of course it's also really all about me. 

If you haven't checked out Hopeful Parents site yet, please do!  I'm continually impressed with the skill and authenticity of the writers I see over there.