Finding Joy in Simple Things: PWS Awareness Day 6: Never Full

Tuesday, May 6, 2014

PWS Awareness Day 6: Never Full

This is what "never full" looks like:

Oscar's siblings would tell you about the repetitive scrape of metal on ceramic, a spoon chasing the last shreds of cabbage in tonight's soup bowl. Or the sneaky finger swipes through the cup of yogurt at snack time. The apple reduced to seeds and a stem.

"I think you got it Oskie," I've heard us all say a million times.

2 comments:

j9kovacMay 6, 2014 at 11:40 PM
that's a pretty clean plate. So how to do you know how much to give him?
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MaryMay 6, 2014 at 11:45 PM
That's coming soon....
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About My Kiddos

Abe (15): Athletic, thoughtful and shy. Skillfully motivates and teaches his siblings everything from fractions to board games to goal-tending. After a "lifetime" of playing baseball he switched to rowing this past fall and is loving the intensity and challenge. He still watches baseball and umps baseball games, but instead of swinging phantom baseball bats in the living room during homework breaks he's pulling an invisible oar.

Oscar (13): Endearingly earnest and hardworking. Loves pop music and the Oakland A's....and saves every penny so he can someday "buy a zoo and live in a big house with his wife, children and five golden retrievers". Lives well with Prader-Willi syndrome and it's accompanying insatiable appetite, low tone, scoliosis, sensory integration issues, slow processing, learning disabilities, behavior challenges, and fatigue.

Ruby (9): Independent, athletic, and bright. Spends her free time reading, creating structures out of everything from cardboard to legos, playing board games and kicking her soccer ball in the house. Can entertain a car-full of high school rowers with her charm and jokes.