I'm going to give it a shot on my blog (on an almost-sort-of-daily basis), and am kicking off the month with what I call the "before" picture.
Paul's dad snapped this photo of us with Abe (age two) as we headed off to the hospital. Oscar would be born 12 hours later.
This is me before I'd ever heard of Prader-Willi syndrome. Before I knew what low muscle tone and insatiable appetite meant. Before I really knew what pain, grief, and even joy, really were.
I used to want to go back to this moment, to climb back into my younger self's innocence and relish it. But that's the thing about innocence -- you can't really appreciate it until it is gone.
I don't have a plan for this month of blogging but I'm hoping it will give me a chance to share little snippets from our daily life and how we've approached this complex disorder. Stay tuned!